Waivers & Other Confusing Things Pt. 4: When the EVV System Meets Real Life

Now that you understand how EVV is supposed to work, the next question is harder to ignore. 

What happens when real life doesn’t fit neatly into that system? 

Because it doesn’t. And when it doesn’t—someone ends up paying for it. 

Let’s Start With What’s Happening Right Now 

Right now, live-in caregivers don’t have to use the Electronic Visit Verification (EVV) app to clock in and out. But those who do?  They run into a myriad of problems. 

Even though the caregiver (provider) is the one clocking in and out, and when their phone is being tracked, the reality is that the individual receiving services (consumer) is being tracked, too. Because when you track where care happens, when it happens, how long it lasts, and the tasks performed, you are documenting the life of the person receiving that care. And that goes into the “system”…wherever that is. 

All of this information is being recorded.  Daily.  Where they are.  What their routines look like.  What happens in their homes (even in their bathrooms).  Day. After. Day.   Not in a facility.  In someone’s home. 

It’s claimed that location isn’t tracked between clocking in and clocking out, but with a system like this, it’s not unreasonable to question that. 

Real Life Doesn’t Run on a Perfect Timeline 

There’s an assumption built into this system that everything will happen on time, in order, and the way it’s supposed to. But the reality is—the same life that requires this level of care is often the reason things don’t happen on a perfect timeline.  There are 

Appointments
Emergencies
Exhaustion 

Things that don’t wait…  

And when the system doesn’t allow for that, it’s not measuring responsibility; it’s ignoring reality.  

When Reality Doesn’t Fit… There Are Consequences 

If something isn’t submitted correctly, or approved in time, or doesn’t line up the way “the system” expects, it doesn’t just get corrected, it gets delayed, flagged, and yes, denied. 

In some cases, if things aren’t done exactly right, services can be impacted–and that’s where this stops being about paperwork. We’re not talking about a missed deadline at an office job, we’re talking about someone’s care. 

Someone’s ability to stay in their home. 

Someone’s stability. 

The Weight Falls in the Wrong Place 

This is where the whole thing breaks down. A lot of times, the person responsible for approving timesheets is the consumer. They are the employer of records (EOR).  This is the heart of “consumer directed” (CD) services.  An individual qualifies for services (which makes them the “consumer”) & when able, does the hiring, does the firing, does the timesheet approvals. The person who needs care is expected to manage the system that controls that care. 

But when it doesn’t go perfectly—they’re the ones who carry the consequences. 

Let’s flesh this out a bit, shall we? 

The consumer is the one who is already navigating daily challenges, relying on consistent care, managing more than most people realize, who now are expected to manage a system that requires precision, timing, and accuracy. 

With very little room for error.  

If something goes wrong (as it will, because…well…life) it doesn’t stay contained in the system.  It spills over into real life, because providers leave when things become too complicated or uncertain.  Care becomes harder to keep. Routines are disrupted.  And the person at the center of all this—the consumer, the individual receiving services—has to absorb it. 

It can look like 

App glitches
No cell service
Wi-Fi going down at the worst possible time 

Sometimes timesheet approvals can be delayed because the person receiving care is dealing with a health issue, a hospital visit, a bad day where just getting through it takes everything they have.

It can be something as simple as forgetting, being exhausted, or not even realizing something didn’t go through correctly. 

Normal life. 

But the system doesn’t account for normal life. 

Let’s Be Honest About What That Leads To 

When care becomes unreliable, when consumers can’t find or keep providers, when the system becomes harder to navigate than the care itself, there is a very real risk.  The conversation then shifts from “How do we support this person at home?” to “What are the other options?” 

And those “options” don’t always look like independence.  Sometimes the consumer has to go to a facility to receive the necessary care, because providers cannot be found in their communities. 

WHICH WAS THE WHOLE POINT OF THE WAIVERS TO BEGIN WITH! 

If interested, I can get into the history of waivers in a later post, and provide an overview of the Americans with Disabilities Act (ADA), Olmstead v. LC, and the Department of Justice’s (DOJ) action against the Commonwealth of Virginia.  (And whatever else I may deem important—those who know me know that I love research and information, and even more, getting that information to others.) 

This Is the Part That Should Make You Pause 

The person receiving services didn’t create the system, doesn’t control it, and isn’t trying to work around it.  They’re trying to live their life. Yet when things don’t line up perfectly, they’re the ones who feel it first. 

Let’s Put It Plainly 

This system doesn’t just track care. 

It can interrupt it. 

It can complicate it. 

And in some cases— 

It can put it at risk. 

Final Thought 

No one is saying there shouldn’t be accountability, but accountability should make care stronger—not more fragile. When a system can’t handle real life, it doesn’t just fail on paper; it fails the person it was meant to support. 

Because at the end of the day, this isn’t just about documentation. 

It’s about a person whose daily life is being recorded—often with little clarity about where that information goes or who has access to it. 

It’s about a system that places responsibility on the person receiving care
to keep everything running exactly right. 

And it’s about what happens when real life doesn’t line up with that expectation. 

We call it consumer-directed care, but when the EVV app is driving the process…it starts to feel more app-directed. 

And that’s a shift worth paying attention to. 

Coming up in Part 5, I move beyond how this works & show you what it looks like to actually live with it—from personal and shared stories.  If you have a story you’d like to share, please email me at miss.wva279@gmail.com You have my word that your story will remain anonymous.

 

If this shifted your perspective—even a little—or if you know someone who needs to understand this side of it, share it with them. Because the more people who see what this looks like in real life, the harder it is to ignore. 

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